Wednesday, May 21, 2008

Johnny's Ride

Ride Against Oral Cancer


More than 34,000 Americans will be diagnosed with oral or pharyngeal cancer this year.
It will cause over 8,000 deaths, killing roughly 1 person per hour, 24 hours per day.
Of those 34,000 newly diagnosed individuals, only half will be alive in 5 years.

Surprisingly staggering is it not? This is according to the last stats which have been gathered. Since this time there is a new drug being used in Chemotherapy called Erbitrux which is a tremendous breakthrough. And the Radiation Oncologists are fine tuning their techniques as well. But until the new data is in the stats are what we have. I do not expect the mortality rates to change that much, but any would be great.

The treatments are what really get to you though. Not just the discomfort caused from radiation but the costs as well. To date I have emptied my savings on bills that insurance would not cover. I currently have about 7000.00 that I have had to pay for and I still have a pet scan every year that will cost about $2500.00 per. With a 3000.00 deductable that is a lot of out of pocket money. Not to mention that the cobra is sneaking up on me quickly.

So, my best advocate, my sister, decided to hold a bike ride to help offset those costs. And hopefully we can raise awareness at the same time. Click Here to learn more about the ride.

3 comments:

Dr. Swill said...

3 weeks of RAD down 3 to go...how are you doing?

I'm back at MD Anderson on a new adventure! Yippie!

John said...

Hey Brian,

I am doing ok. I have had 5 L of fluids with potasium over the last 3 days. Maybe more next week, we shall have to wait and see. My blood pressure is back up today. It was 90 over 69. Today was 111 over 70. After this week is done, I have only 2 weeks and 2 days left. I can pull out globs of hair at the back of my neck. All face hair is gone too. Is from the radiation. I knew it was coming, but it still freaks you out. So I had me a big ol pitty party for myself today.
Thanks for thinking of me!

John

Anonymous said...

Hey John!

I have a friend of a friend (really!) who had a tumor in the back of his tongue and went through the radiation/chemo path vs. surgery (I did surgery and 6 weeks of radiation). He just had his post-treatment scan and he is cancer free! Someone told me in my recovery that considering how lousy I felt, just imagine how those little cancer cells feel. Hang in there! Hope is the most important thing we have and hope is realized every day. Those darn statistics can make us shudder, 50% of us MAY not be here in 5 years, but today we can chose to be here 100%. Every day counts. Prayers and best wishes for you. (and yes, the back of my head is smooth as a baby’s butt too. It’s growing back in little tufts!)
Lois